I don't want to mourn the death of my mother. I want to celebrate the life of the woman who gave the gift of life to two sons and a daughter.
When Mom received her Alzheimer's diagnosis in March 2001 she called me in tears to tell me the doctor wanted to speak with me about it. I offered to go to her house immediately, but she said no. She already was at work on her strategy to battle with Alzheimer's. She didn't want to be brain dead and later on, she often said her brain was dead, but it wasn't. She struggled very diligently to beat Alzheimer's at its own game.
I scheduled an appointment and went to see Dr. G. What I didn't know that day is that his mother-in-law had just been diagnosed with Alzheimer's also. Had I known that, I might have understood why he exploded, "Why is everyone so upset about this? This is something that happens to all of us sooner or later, unless we're one of the lucky ones that drops dead on a golf course."
We were upset because this was our mother, the woman WHO GAVE US THE GIFT OF LIFE!!! We expected a heart attack or a traffic crash. Never had any of us ever considered that Mom would develop Alzheimer's Disease. She was a creative mind! She mastered carpentry...built her own kitchen cabinets in 1968 when I was in high school...changed doorways and eventually took out the wall between the kitchen and dining room, opened up the stairway to upstairs which had been closed in when we moved into that two-bedroom house on West Spruce Street when I was 4 years old. She did the electrical wiring, the plumbing, the roof repair. (Sorry, Dad, just the facts. You always said, "I call 'em as I see 'em. I call a spade a spade." Well, I guess I'm my father's daughter at this moment.)
This woman went to the hospital with me and my husband for every birth...four daughters. She had to follow the ambulance from Salem Community Hospital to Akron City Hospital when I was ready to deliver the twins, one natural, the other c-section. The doctor wanted us to be near Akron Children's Hospital in case there were problems. Mom always reassured me. She had a steady hand. "Don't worry until I do, then it's too late," she'd say, when I knew darned well she was worried. She made tomato soup from a single can of tomato paste because that was all she had in the house. And her children raved, "That's the best tomato soup I ever had!" She was the best kind of mom. She raised us with love, acceptance and discipline.
On my wedding day we had tears in our eyes when we looked at each other. I was 19. (And I'm fond of saying that teens are brain dead until they begin to show signs of life again when they are about 22.) "Are you sure you know what you're doing?" she asked. "Yes," I answered.
How could I be anything but at her side when she began her Alzheimer's journey?
When Mom wasn't building something in her house or sewing something on her sewing machine, she was painting with oils. She studied at Kent State University with Dr. Elmer Day. He was amazed at her rapid growth as an artist and told her which paintings to put away, which to sell. But Dad didn't want her to paint. So she stopped. (He denied this, but I'm pretty sure Mom was right about that.) When she gave up painting she displayed her creative skills with quilting. I insisted she make a quilt for me. I have three. When quilting became too difficult, she began to crochet tablecloths and afghans. Not simple patterns. Difficult, advanced patterns. If she had nothing else to do she grabbed a shorthand textbook or a math textbook and worked with those for hours. Every morning, she got up, dressed, poured a cup of coffee and sat down on the sofa with the newspaper to skim through it...obituaries, police news, court news, crypt-o-quote. She copied the crypt-o-quote into her steno pad and worked on it until it was finished. She kept her mind active.
Many times Dad and I talked about what would happen to her when he was gone. He felt it was his responsibility to be her primary caregiver and he did much better than we ever thought he would. When he was hospitalized I stayed with Mom. I remember the night she was home alone. Dad was in the hospital and she called me at midnight to tell me that Dad had gone off and not come home and she was worried because it was so late. I gently reminded her that he was in the hospital. I asked if I should come stay with her. She said, no, she would write herself a note and leave it on the table so she'd find it in the morning. When we hung up, I walked the four blocks to her house (I didn't have a car at the time) and let myself in. She didn't know I was there, but I slept on the sofa that night so she wouldn't be alone when she woke in the morning.
At Dad's last hospital admission, I went to stay with her again. A week later he was gone. I lived with her for four months. I didn't want to put her in a nursing facility. (They are not homes. And they never will be. They are places where people go to wait to die unless they are fortunate enough to get better and go home, or drop dead on the golf course.) I knew my mother. I was trying to keep her in her home where she wanted to stay. My husband didn't want to move to Mom's. Mom didn't want to move to our house. And I was between The Rock and The Hard Place. But as the Alzheimer's progressed, like most patients with AD, she became comfortable with my presence and began to be angry, belligerent.
One morning she came downstairs, happy as can be. She got her cup of coffee, went to the living room, and after a little while said, "We get along so well. Our living together is working well." I agreed. My husband came in and sat down in Dad's recliner. My mother got up, walked through the dining room where I was working on the computer, and went into the bathroom, closing the door behind her. The same woman did NOT come out of that bathroom. The door opened and released an angry stranger ranting and raving at me. I didn't know whether to sit still and wait until she was finished ranting at my back or whether I should stand up and look at her. I stood up, and slowly turned. I was a bit taller, so she had to look up at me. She began to back down and before she walked away she said, "I want you to go home. I don't want you here." "OK, Mom," I said. "I will take care of that for you.
We moved Mom to a nursing facility (not home) in mid-July. She hated being there at first. Later she said things like, "I don't guess I'll ever go home. I will probably die here."
The long and short of it is that 25 months after she moved to the facility (not home), I got a phone call. "I realize you spent the afternoon with your mother, but she's restless. Her blood pressure is 65/55, her oxygen level is 87 percent. Will you come sit with her a while?" Of course! I contacted my brothers, my children, and we all gathered around her. She had been telling my middle daughter that she wanted to go "home" but she wouldn't tell me. Christie said, "You need to tell Mom, Honey. It's OK." But she wouldn't tell me. (My children call my mother Honey. It was a name Mom loved because she didn't have to share it with anyone else...like Grandma, Gran, Granny. It was HER name. And it fit her so well.) Mom spoke my name to Christie. Christie told her I would be OK. That Christie would see to it, promised she'd always make sure I was OK. "If you're worried about Mom, you don't need to be. I promise. I will take care of her, Honey."
"Mom?" I said. "Are you planning a trip without me, Mom?" I turned serious. "Mom, if leaving us is the best thing for you, it's OK. We don't want you to go. We will miss you like crazy! But it'll be OK. Don't worry about us. It'll be OK. Remember when you told Levi to go to Grandma and stay with her until you get there? He'll be right there waiting for you, Mom. Levi will be right there waiting. You'll get to see Dad. You'll get to see YOUR dad and your mother. It's OK, Mom. It's OK."
We tried to soothe her...held her hands...rubbed her arms. But she pushed us away. I decided she was working at clipping the strings that held her to this world and she didn't want our interference. Toward 3:15 a.m. my daughters went home because their husbands had to go to work in a couple of hours and their children needed them to be at home. Toward 3:30 a.m. I sat beside her, fighting to stay awake. I dozed off for just a moment. As if she'd been watching for that moment she snatched it. My brother Richard tapped me. "She's gone." I looked. The news story on TV was the same one. I couldn't have dozed off for more than a moment. And she was gone.
Alzheimer's is a terrible disease, not so much for the person who has it as it is for the family that loves that person. For months I asked God for two things: Please, be kind to my mother. She has always been loyal and true. And, please, don't ever let the Alzheimer's get so bad that she forgets her family, the people who love her.
Goldie Louise Baker Thomas passed from this world at 3:40 a.m. Aug. 23, 2011. (The death certificate logs a later time, but we were there. We know.) She loved deep and she loved hard. And she was so easy to love.
I miss you, Mom. So much.
Love you forever,
Cathy
Copyright - Cathy Thomas Brownfield ~ All Rights Reserved. May not be used without permission.
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