Today is my mother's 80th birthday. I wanted to take her out for ice cream to celebrate, but the temperature was so close to frigid I just couldn't bring myself to take her out. So, my husband and I took flowers to her.
"Do you feel any different at 80 than you did at 79?" I asked.
"I can't believe I'm 80 years old!" she said. And I immediately thought about her mother's 80th birthday.
Grandma never told anyone her age. And when she had to go to the emergency room for treatment the doctor asked her how old she was. "Don't you know you aren't supposed to ask a woman her age?" She refused to tell him how old she was. But on her 80th birthday--which party was at my home--she kept saying, "I can't believe I'm 80 years old!"
I reminded Mom of that again. She doesn't remember. When I was there a couple of days ago she couldn't remember that Dad has been gone for nearly two years. "Did you see your dad go over there?" She pointed toward the other side of the room.
"No. Mom, Dad is gone. He will be dead two years in March."
Today I looked into her blue eyes. She still knows us, and I can't explain what I saw there. I looked at the table settings and asked who she sits with for supper. She asked, "Don't you remember Fred?" And I felt silly for asking the question I did. Nobody else was brought to her table. I wondered why as we got ready to leave.
She isn't argumentative as she used to be. Someone mentioned it was her birthday and other residents called Happy Birthday to her. And Sunday, we will bring her to my house for a birthday party with family and she will receive more greetings and enjoy food unlike what she eats at the nursing home. And maybe for a little while we will forget that things have changed so drastically. I understand she's top winner at Uno even though she tells them she has never played the game before.
Happy Birthday, Mom!
Friday, January 21, 2011
Thursday, January 13, 2011
Reasons
It’s a cold January day. I haven’t gone to see Mom for a few days. I’ve had that nasty cold that’s going around and I didn’t want to give it to her or anyone else at the nursing home.
When I sit down to post here, I am not sure what to write. Things are different. Our visits, Mom’s and mine, are never for more than an hour or two. She can’t follow conversation very well, and forgets we’ve spoken of things just a moment before so we speak the same things over and over and I try to answer differently each time, though I don’t know why because she won’t remember any of the variety of answers. And when I leave, she will not remember that I have been there. She will tell the staff that her daughter hasn’t been there to see her in a long time. I began to look for things to take with me for us to do together. Like jigsaw puzzles. The 750-piece puzzles are too much for her. The 300-piece puzzles also are difficult for her, but she does manage to find homes for some of the pieces. I think we’ll try a smaller number of pieces.
She doesn’t crochet as much as she used to. I asked her why.
“I can’t find my hook.”
I found it in a bag of yarn, and gave it to her. She was delighted! But forgot about it quickly.
I met with the staff last week for her quarterly care meeting. She’s gained 40 pounds since she went there. But much of the weight gain probably is because she was unable to walk and spent most of her time in a wheelchair. They noted that she doesn’t crochet as she used to. I explained she can lose me sitting beside her. She needs help to “see” the hook and yarn so she will do it. Just like she needs someone to guide her to the toothbrush and take care of her teeth. At Christmas dinner she had to go to the bathroom. I helped her to the sink. She was going to wash her hands with toothpaste.
Christmas dinner went so well that, after New Year’s, my daughters Christie and Beth and Beth’s daughter, Aubriana, and I, took Mom, aka Honey, to lunch. That went well, too. I can manage the walker, but the wheelchair was too big to fit into my car and I couldn’t manage it at all because of its size. They told me the wheelchair has been taken away because she doesn’t need it any more. Wonderful news! Now I can take her to lunch or bring her to my house to spend the day and visit here with family and eat supper with us before I take her back to her existence at the nursing home. I’m not sure I can call it ‘life’ there because I’m not convinced that anyone spends much time with her there. And I have asked that they do little things with her every day to help keep her brain functioning for as long as we can.
I had a terrible battle with guilt about putting Mom in a nursing home. I was told it would be better so I wouldn’t have to take care of her around the clock. Caregivers often are NOT taken care of. That I would be able to get my rest, too, and our visits would be better.
I often hear people say, “Things happen for a reason.” I believe it’s true.
One day Mom said to me, “I wonder if we’re too close.” She was sincerely concerned and troubled by that thought.
“What do you mean?”
“If something happens to me, it’s going to hurt you very deeply because we are so close.”
“Why don’t you let me worry about that?” I suggested. “We’ll make memories that will get me through the times I will have to face later. I’ll take the memories.”
That was a long-ago conversation. Years ago. Of course, I thought we were referring to her death…the death of the body. And sometimes now I think death of her body would be better, easier, than the slow progression of the theft of her mind by Alzheimer’s, that subtle thief that steals her memories from her and mockingly steals our mother and grandmother from us in its own sweet time.
When I walk in the door, her eyes light up with recognition and her smile spreads all over her, all over me, all over the room like warm sunshine.
“You know me?”
“You’re my daughter, Cathy. I will never forget you.”
Why does that make my throat close and send tears burning to my eyes. I so hope she is right.
Having her live separate from me is perhaps a tool to help me to begin to sever the earthly ties that bind us so when God does take her home I will be able to cope with losing Mom. And perhaps last year’s gout episode that kept her in a wheelchair for most of 2010 was God’s way of preventing me bring her home too much when I need to be preparing for the life changes ahead. And to not use Mom as a way to ignore the decisions in my own life that need attention. And to take time to breathe and just be, to smell the roses. To enjoy my grown children and their children, and to pursue my own dreams that have always been pushed to the back burner and off of the stove.
“Do you remember me?”
“You are my daughter, Cathy. I will never forget you.”
When I sit down to post here, I am not sure what to write. Things are different. Our visits, Mom’s and mine, are never for more than an hour or two. She can’t follow conversation very well, and forgets we’ve spoken of things just a moment before so we speak the same things over and over and I try to answer differently each time, though I don’t know why because she won’t remember any of the variety of answers. And when I leave, she will not remember that I have been there. She will tell the staff that her daughter hasn’t been there to see her in a long time. I began to look for things to take with me for us to do together. Like jigsaw puzzles. The 750-piece puzzles are too much for her. The 300-piece puzzles also are difficult for her, but she does manage to find homes for some of the pieces. I think we’ll try a smaller number of pieces.
She doesn’t crochet as much as she used to. I asked her why.
“I can’t find my hook.”
I found it in a bag of yarn, and gave it to her. She was delighted! But forgot about it quickly.
I met with the staff last week for her quarterly care meeting. She’s gained 40 pounds since she went there. But much of the weight gain probably is because she was unable to walk and spent most of her time in a wheelchair. They noted that she doesn’t crochet as she used to. I explained she can lose me sitting beside her. She needs help to “see” the hook and yarn so she will do it. Just like she needs someone to guide her to the toothbrush and take care of her teeth. At Christmas dinner she had to go to the bathroom. I helped her to the sink. She was going to wash her hands with toothpaste.
Christmas dinner went so well that, after New Year’s, my daughters Christie and Beth and Beth’s daughter, Aubriana, and I, took Mom, aka Honey, to lunch. That went well, too. I can manage the walker, but the wheelchair was too big to fit into my car and I couldn’t manage it at all because of its size. They told me the wheelchair has been taken away because she doesn’t need it any more. Wonderful news! Now I can take her to lunch or bring her to my house to spend the day and visit here with family and eat supper with us before I take her back to her existence at the nursing home. I’m not sure I can call it ‘life’ there because I’m not convinced that anyone spends much time with her there. And I have asked that they do little things with her every day to help keep her brain functioning for as long as we can.
I had a terrible battle with guilt about putting Mom in a nursing home. I was told it would be better so I wouldn’t have to take care of her around the clock. Caregivers often are NOT taken care of. That I would be able to get my rest, too, and our visits would be better.
I often hear people say, “Things happen for a reason.” I believe it’s true.
One day Mom said to me, “I wonder if we’re too close.” She was sincerely concerned and troubled by that thought.
“What do you mean?”
“If something happens to me, it’s going to hurt you very deeply because we are so close.”
“Why don’t you let me worry about that?” I suggested. “We’ll make memories that will get me through the times I will have to face later. I’ll take the memories.”
That was a long-ago conversation. Years ago. Of course, I thought we were referring to her death…the death of the body. And sometimes now I think death of her body would be better, easier, than the slow progression of the theft of her mind by Alzheimer’s, that subtle thief that steals her memories from her and mockingly steals our mother and grandmother from us in its own sweet time.
When I walk in the door, her eyes light up with recognition and her smile spreads all over her, all over me, all over the room like warm sunshine.
“You know me?”
“You’re my daughter, Cathy. I will never forget you.”
Why does that make my throat close and send tears burning to my eyes. I so hope she is right.
Having her live separate from me is perhaps a tool to help me to begin to sever the earthly ties that bind us so when God does take her home I will be able to cope with losing Mom. And perhaps last year’s gout episode that kept her in a wheelchair for most of 2010 was God’s way of preventing me bring her home too much when I need to be preparing for the life changes ahead. And to not use Mom as a way to ignore the decisions in my own life that need attention. And to take time to breathe and just be, to smell the roses. To enjoy my grown children and their children, and to pursue my own dreams that have always been pushed to the back burner and off of the stove.
“Do you remember me?”
“You are my daughter, Cathy. I will never forget you.”
Wednesday, December 29, 2010
Time...takes care of all things
Time takes care of all things. I remember Mom used to tell me that when I was upset or my heart was broken. She has been living in a nursing home for a year and a half. She doesn't remember when I've been there to visit. She can lose me when I'm sitting right beside her. But her eyes light up and a smile touches all of her features. "There's my daughter, Cathy," she will say. "I hope you never forget me," I answer. "I will never forget you," she says.
She doesn't seem to get angry any more, or call me to ask me to come and get her out of there. The staffers no longer call me to say Mom's a little agitated and will I talk to her for a few minutes and see if it calms her. I still write notes to her in her notebook to read when I'm gone. Last time the paper in the notebook was stained as if she had spilled a cup of coffee over it. A piece of a page was torn from it as if she might have needed to write something down, but has now forgotten all about whatever she had to write down...and, I think, even the notebook.
But our visits are pleasant. We discuss the same things over and over again. I took a couple jigsaw puzzles for us to put together. I thought it would help keep her brain active. I thought it would be something different to talk about. And I thought if the puzzle wasn't complete before I left, staffers and visitors and even her roommate would utilize it to talk with her. No. I finished it. Mostly in silence. There's so little for us to talk about because she remembers so little.
I helped her escape on Thanksgiving for dinner with some of the family at my #1 daughter's house. I helped her escape on Christmas for dinner with all of us at my house. I said to my daughters, "We haven't had a girls night in a while. It's time." Mom asked, "Can I go to girls' night, too?" "Of course!" I answered. As soon as the discussion was done, she forgot about it. And when I took her back to the nursing home, I carried her gifts in for her and set them on the bed. "Whose stuff is that?" she asked. "Yours," I answered and asked, "Do you want to open them again?" So we opened them again and I put her new clothes on hangers after I put her name on them. In a nursing home you have to put your name on your belongings and you shouldn't have anything that can't be washed in hot water. I think they wash everything in hot water.
Then I hugged her and told her how much I love her. And she hugged me back, kissed me on the cheek and told me how much she loves me.
I miss my mom. I miss her so much. We can't have those deep discussions any more. Or go shopping and to lunch where we laughed and plotted and planned things. We can't quilt together any more or make dolls for my girls or teddy bears for each other. We can't go on trips like Mackinaw Island, Michigan. We can't walk up the alley and back on a gentle summer afternoon.
Time...It passes so quickly!
She doesn't seem to get angry any more, or call me to ask me to come and get her out of there. The staffers no longer call me to say Mom's a little agitated and will I talk to her for a few minutes and see if it calms her. I still write notes to her in her notebook to read when I'm gone. Last time the paper in the notebook was stained as if she had spilled a cup of coffee over it. A piece of a page was torn from it as if she might have needed to write something down, but has now forgotten all about whatever she had to write down...and, I think, even the notebook.
But our visits are pleasant. We discuss the same things over and over again. I took a couple jigsaw puzzles for us to put together. I thought it would help keep her brain active. I thought it would be something different to talk about. And I thought if the puzzle wasn't complete before I left, staffers and visitors and even her roommate would utilize it to talk with her. No. I finished it. Mostly in silence. There's so little for us to talk about because she remembers so little.
I helped her escape on Thanksgiving for dinner with some of the family at my #1 daughter's house. I helped her escape on Christmas for dinner with all of us at my house. I said to my daughters, "We haven't had a girls night in a while. It's time." Mom asked, "Can I go to girls' night, too?" "Of course!" I answered. As soon as the discussion was done, she forgot about it. And when I took her back to the nursing home, I carried her gifts in for her and set them on the bed. "Whose stuff is that?" she asked. "Yours," I answered and asked, "Do you want to open them again?" So we opened them again and I put her new clothes on hangers after I put her name on them. In a nursing home you have to put your name on your belongings and you shouldn't have anything that can't be washed in hot water. I think they wash everything in hot water.
Then I hugged her and told her how much I love her. And she hugged me back, kissed me on the cheek and told me how much she loves me.
I miss my mom. I miss her so much. We can't have those deep discussions any more. Or go shopping and to lunch where we laughed and plotted and planned things. We can't quilt together any more or make dolls for my girls or teddy bears for each other. We can't go on trips like Mackinaw Island, Michigan. We can't walk up the alley and back on a gentle summer afternoon.
Time...It passes so quickly!
Tuesday, August 17, 2010
Waiting
The nursing home seems to be a place where one goes to wait to die. Everything you own is taken from you. You can't live alone so you can't have your house. You might get lost so you can't have your car. People even exchange your keys for keys that won't work. You can't keep your valuable jewelry because you might flush it down the toilet for safe-keeping. You can't cook because you might forget you left a pan on the stove with the burner on and could start a fire, burn down the house. And your kids have lives to live. They can't live those lives if you are a burden for them.
Mom calmed considerably when she went to live at the nursing home. There have been some Sundowners episodes, taken care of with a dose of Atavan. Her roommate died. They were neighbors for decades, roommates for a year. Mom didn't remember. Any of it. And wonders who the other woman is who sleeps in her room.
Dad has been gone nearly a year and a half. Mom complains to the aides, "When I get my hands on that man I'm going to kill him for dumping me here."
But when I am there she says, "Bill is dead, isn't he?" Yes. "What I really don't understand, though, is why my mother doesn't come to see me." She's gone, Mom. She died in 1983. "Oh. I didn't remember that. I just thought if that's the way she wants to be I won't go to see her, either."
And to her roommate, "I haven't seen my daughter in a long time." That's not true, Paula says. She was here to see you and left a note in your notebook for you. So Mom gets the notebook and begins to read.
My brother, Bill, insisted on a notebook so visitors could sign and date it. That way Mom would see that we'd been there to see her. Most of the notes are from me.
"I didn't know about the notebook," Richard said. I probably forgot to tell him. I don't have Alzheimer's, do I?
"I will probably die here," Mom says wistfully. She probably is right. The nursing home seems to be a place where one goes to wait to die.
Mom calmed considerably when she went to live at the nursing home. There have been some Sundowners episodes, taken care of with a dose of Atavan. Her roommate died. They were neighbors for decades, roommates for a year. Mom didn't remember. Any of it. And wonders who the other woman is who sleeps in her room.
Dad has been gone nearly a year and a half. Mom complains to the aides, "When I get my hands on that man I'm going to kill him for dumping me here."
But when I am there she says, "Bill is dead, isn't he?" Yes. "What I really don't understand, though, is why my mother doesn't come to see me." She's gone, Mom. She died in 1983. "Oh. I didn't remember that. I just thought if that's the way she wants to be I won't go to see her, either."
And to her roommate, "I haven't seen my daughter in a long time." That's not true, Paula says. She was here to see you and left a note in your notebook for you. So Mom gets the notebook and begins to read.
My brother, Bill, insisted on a notebook so visitors could sign and date it. That way Mom would see that we'd been there to see her. Most of the notes are from me.
"I didn't know about the notebook," Richard said. I probably forgot to tell him. I don't have Alzheimer's, do I?
"I will probably die here," Mom says wistfully. She probably is right. The nursing home seems to be a place where one goes to wait to die.
Friday, February 19, 2010
Back on her feet
December was a difficult month for Mom with several hospital visits. January found her bedridden with gout. It has been a long winter for her. She now has to work to get strength enough to be able to walk on her own again, 10 feet at a time. Last week she walked 25 feet, 40 feet. Today she walked 75 feet, moaning with pain with every step. But she did it. And was so exhausted when she landed in the recliner that she napped for the rest of my visit.
For some reason I can't explain, the staff seems to think I don't know much about Alzheimer's. Today the physical therapist said something about the Alzheimer's.
"I know. I stayed with her for 127 days before we brought her here. I've been involved ever since she got her diagnosis. " (That was early March 2001.) "I've shared as much of her journey with her as I can, from the beginning."
The Alzheimer's is claiming Mom one day at a time. Her movements are much slower than they used to be, but she was crocheting something the other day that she hadn't crocheted in a while. It was perfect.
I think it's certain that Mom will never be able to go back home to live. In all of these months, since July, (and I can speak only for myself), I have come to terms with the situation. I don't feel guilty for moving her there any more. She would not be safe alone in her home. And with all of my other commitments, obligations and responsibilities, I don't have time or energy or expertise to provide her care 24/7. This way, when we visit, we enjoy each other's company because I'm not the bossy daughter. She always lights up when one, or more, of her children show up to visit her.
We are making memories, but Mom will never retain them.
(c) 2010 Cathy Thomas Brownfield
For some reason I can't explain, the staff seems to think I don't know much about Alzheimer's. Today the physical therapist said something about the Alzheimer's.
"I know. I stayed with her for 127 days before we brought her here. I've been involved ever since she got her diagnosis. " (That was early March 2001.) "I've shared as much of her journey with her as I can, from the beginning."
The Alzheimer's is claiming Mom one day at a time. Her movements are much slower than they used to be, but she was crocheting something the other day that she hadn't crocheted in a while. It was perfect.
I think it's certain that Mom will never be able to go back home to live. In all of these months, since July, (and I can speak only for myself), I have come to terms with the situation. I don't feel guilty for moving her there any more. She would not be safe alone in her home. And with all of my other commitments, obligations and responsibilities, I don't have time or energy or expertise to provide her care 24/7. This way, when we visit, we enjoy each other's company because I'm not the bossy daughter. She always lights up when one, or more, of her children show up to visit her.
We are making memories, but Mom will never retain them.
(c) 2010 Cathy Thomas Brownfield
Tuesday, January 19, 2010
Spread too thin?
I entered my mother's room. She was sleeping. At two o'clock on a Sunday afternoon. She rarely slept the afternoon, but it wasn't completely unheard of. I relaxed in her recliner to wait until she woke. An hour later she was still sleeping. So many health issues in so few weeks: three hospital visits resulting in two admissions during Christmas week. When she is admitted I stay with her around the clock, except during relief by my brothers or sister-in-law, so she won't become confused, upset and need to be sedated. When she sees me or hears my voice, she calms down. It happened every night. I asked the nurses to set the bed alarm at night because she wouldn't argue with them the way she argues with me. The main thing was keeping her calm and feeling secure.
We got through the holidays. And then she was bed fast. I met with the head nurse and physical therapist. Does the nursing home staff expect me to believe they "are doing their jobs" when I can observe the signs they are not? THEY are the ones who said the doctor talked to the nurses on the floor via the telephone to determine her condition and subsequent care, to decide if she should be transported to the hospital for the ER doctors to determine her condition, it appeared, so he wouldn't have to be troubled with earning the fees he was being paid. I am the one who said, "He's on thin ice with me. HE is the doctor and he will use his own eyes, not the nurses' eyes to take care of her or I'll replace him." (I can do this because I hold the health care power-of-attorney and I won't hesitate to do what I believe is in my mother's best interests.
To get a call about orders for a salve to heal the rash in Mom's abdominal fold was disturbing. If they are bathing and powdering her abdominal fold daily there probably isn't going to be a rash there. I don't expect perfection from them. And I'm trying very hard to be reasonable. However, this is my mother...the woman who sacrificed everything to make sure we all had what we NEEDED...the woman who worked hard every day of her life for the good of the whole, not the part.
It occurs to me that maybe I need to become a nursing home patient advocate when my mother is no longer in need of me...when she has crossed beyond the grave to the loved ones who are waiting to welcome her home. Yes, I believe this. It comforts me to know she will be whole again when she makes that journey. Yet, not having her where I am will sorely hurt.
I visited her Saturday. She was in bed, her feet up, now healing, her crochet work in her hands. I sat in her recliner, feet up, researching with my netbook for something I was writing. We didn't talk a lot. When we talk, we speak of the same things over and over again as if it was the first time every time. We were content just being together. I said so. She agreed.
The winter has been long and troublesome. I feel drained to almost empty. I am saddened to think I offended Nancy on Saturday. She and her husband were inside McDonald's. I was in my car in the drive-thru. I wasn't 100 percent sure it was her. I didn't wave. I didn't mean to snub her at all. I am so drained I feel like I'm on 10-second delay. Please, God, don't let it be Alzheimer's. My memory is fine. I just have the slows!
The pace is rising. I have more responsibilities and obligations. I began today to babysit my 3-year-old granddaughter while her mother attends college classes. I want to do this because education is extremely important, and my parents helped me with my children so I could pursue my dreams, too. I have to visit Mom frequently to make sure she's getting the right care, consistently. I have my publicity job for Family Recovery Center that requires time each week. My house needs a thorough cleaning but with the recent changes (two college students are living with us again) I'm not sure where to start. Work schedules, school schedules, my schedule and mealtimes are challenging...and for me to be worth anything I need seven or eight hours of sleep at night, uninterrupted.
Why do I feel the need to share all of this? Because I don't want anyone to think I'm a spoiled, selfish, self-centered, worthless slug! It seems, right now, like the only one who recognizes this is my mother, the woman with an Alzheimered mind. Oh, Hummingbird, please, please, please, don't fly away!
Yet, minute by minute you are.
(c) 2010 Cathy Thomas Brownfield
All rights reserved -- Contact author for permission of use.
We got through the holidays. And then she was bed fast. I met with the head nurse and physical therapist. Does the nursing home staff expect me to believe they "are doing their jobs" when I can observe the signs they are not? THEY are the ones who said the doctor talked to the nurses on the floor via the telephone to determine her condition and subsequent care, to decide if she should be transported to the hospital for the ER doctors to determine her condition, it appeared, so he wouldn't have to be troubled with earning the fees he was being paid. I am the one who said, "He's on thin ice with me. HE is the doctor and he will use his own eyes, not the nurses' eyes to take care of her or I'll replace him." (I can do this because I hold the health care power-of-attorney and I won't hesitate to do what I believe is in my mother's best interests.
To get a call about orders for a salve to heal the rash in Mom's abdominal fold was disturbing. If they are bathing and powdering her abdominal fold daily there probably isn't going to be a rash there. I don't expect perfection from them. And I'm trying very hard to be reasonable. However, this is my mother...the woman who sacrificed everything to make sure we all had what we NEEDED...the woman who worked hard every day of her life for the good of the whole, not the part.
It occurs to me that maybe I need to become a nursing home patient advocate when my mother is no longer in need of me...when she has crossed beyond the grave to the loved ones who are waiting to welcome her home. Yes, I believe this. It comforts me to know she will be whole again when she makes that journey. Yet, not having her where I am will sorely hurt.
I visited her Saturday. She was in bed, her feet up, now healing, her crochet work in her hands. I sat in her recliner, feet up, researching with my netbook for something I was writing. We didn't talk a lot. When we talk, we speak of the same things over and over again as if it was the first time every time. We were content just being together. I said so. She agreed.
The winter has been long and troublesome. I feel drained to almost empty. I am saddened to think I offended Nancy on Saturday. She and her husband were inside McDonald's. I was in my car in the drive-thru. I wasn't 100 percent sure it was her. I didn't wave. I didn't mean to snub her at all. I am so drained I feel like I'm on 10-second delay. Please, God, don't let it be Alzheimer's. My memory is fine. I just have the slows!
The pace is rising. I have more responsibilities and obligations. I began today to babysit my 3-year-old granddaughter while her mother attends college classes. I want to do this because education is extremely important, and my parents helped me with my children so I could pursue my dreams, too. I have to visit Mom frequently to make sure she's getting the right care, consistently. I have my publicity job for Family Recovery Center that requires time each week. My house needs a thorough cleaning but with the recent changes (two college students are living with us again) I'm not sure where to start. Work schedules, school schedules, my schedule and mealtimes are challenging...and for me to be worth anything I need seven or eight hours of sleep at night, uninterrupted.
Why do I feel the need to share all of this? Because I don't want anyone to think I'm a spoiled, selfish, self-centered, worthless slug! It seems, right now, like the only one who recognizes this is my mother, the woman with an Alzheimered mind. Oh, Hummingbird, please, please, please, don't fly away!
Yet, minute by minute you are.
(c) 2010 Cathy Thomas Brownfield
All rights reserved -- Contact author for permission of use.
Thursday, January 14, 2010
Speaking up
There is a fine line between taking care of a loved one in a nursing home and taking care of a loved one in a nursing home. You read that right. You don't want to make the people who work at the nursing home angry so they will take it out on your loved one, but you want your loved one to be taken care of properly, even when they insist that everything was being done but you just couldn't see it until you raised the questions.
"I don't have to tell you the reputation that nursing homes have," I advised the group of staffers who gathered for the quarterly care meeting for my mother. "There is a stigma, and those questions are always in my mind. And I have to believe the reason that doctor who 'typically doesn't come in on a Tuesday evening' came in because of what I said: He uses the nurses as his eyes and prescribes care over the phone. If he wants to take care of my mother he will have to be his own eyes or he is done. God bless nurses, but they aren't doctors. That is his job!"
What I also said several days ago was this, "I can handle anything when I get the truth. I don't handle well at all being lied to. I'm not saying anyone has lied to me. I'm saying it better not happen."
I haven't used my trump cards yet: I have media connections and I know how to use them. I have no qualms at all about calling state in to investigate. I haven't been hiding the fact that I'm a writer. It just never came up. But I've said several times, in the past week, that I am a writer. They might be saying to themselves, "Oh, NOW I know where I've heard her name."
What I know for certain is that my mother literally marched through Hell for her family when she was raising us. She went without--I'm not talking about luxuries here--so the rest of us could have what we NEEDED. She endured a difficult marriage when it would have been much better for her if she would have left it. But as she told me once, "You can't help who you love," meaning that we fall in love and there's not much we can do about it. And when "you make your bed, you have to lie in it" comes to light. My mother--and I'm sure others feel the same about their mothers--deserves the best care we can provide for her.
My family has to be able to trust them to take good care of Mom in our absence, though they told me there is someone from the family there every day of the week, sometimes more than one person shows up on the same day. I'm glad they notice that because they will tend to her care because they never know when one of us is going to walk through that door. There is a reason why I don't let them know when I am going to visit.
Should family members speak up? If you don't develop a relationship with the staff who take care of your loved one what do you have? When you open your loved one's life to a huge "family" at a nursing facility, you have to open yourself to that family, as well. How can your loved one regard the nursing home as "Home" if you don't? Family isn't just what you're born into. It's the circle of human beings that you belong to.
One of my daughters had a "discussion" with a friend. Afterward, she felt like a heel because she had questioned whether this person was truly her friend. I told her, and I meant it, when you have disagreements with someone, the fixing of things--the making up after a disagreement--strengthens the friendship. That's not a bad thing. In fact, that's a doggone good thing! That's when the misunderstandings and misinterpretations are cleared up.
Should you speak up or keep your mouth shut so you don't cause trouble? In my humble opinion, speaking up is a good thing. It doesn't have to be a knock-down, drag-out. It just needs to be clear: I am aware of the stigma of nursing home facilities. I am aware of what is best for my loved one. I am not trying to offend anyone. I'm trying to be fair, and I'm trying to make sure that my loved one--in my case, my mother--is well taken care of because she deserves to be well taken care of and I'm trying to honor those things she made me promise her when she was diagnosed with Alzheimer's nine years ago.
"I know the day is going to come when you will have to put me in a nursing home. It's OK. You do what you have to do. I know I'm going to argue with you, but it's the right thing so you do it. And when I don't know you any more, stop coming to visit me because I will be gone."
Yes, we moved her to a nursing home. Yes, she has argued with us about it. Will I ever stop visiting her? Probably not. Even when she doesn't know me any more I will continue to go if I am able. Even if all I can do is sit in the chair beside her bed and watch her sleep. But I pray, "Please, Lord, be kind to my mother."
(c) 2010 Cathy Thomas Brownfield
All rights reserved -- Contact author for permission of use.
"I don't have to tell you the reputation that nursing homes have," I advised the group of staffers who gathered for the quarterly care meeting for my mother. "There is a stigma, and those questions are always in my mind. And I have to believe the reason that doctor who 'typically doesn't come in on a Tuesday evening' came in because of what I said: He uses the nurses as his eyes and prescribes care over the phone. If he wants to take care of my mother he will have to be his own eyes or he is done. God bless nurses, but they aren't doctors. That is his job!"
What I also said several days ago was this, "I can handle anything when I get the truth. I don't handle well at all being lied to. I'm not saying anyone has lied to me. I'm saying it better not happen."
I haven't used my trump cards yet: I have media connections and I know how to use them. I have no qualms at all about calling state in to investigate. I haven't been hiding the fact that I'm a writer. It just never came up. But I've said several times, in the past week, that I am a writer. They might be saying to themselves, "Oh, NOW I know where I've heard her name."
What I know for certain is that my mother literally marched through Hell for her family when she was raising us. She went without--I'm not talking about luxuries here--so the rest of us could have what we NEEDED. She endured a difficult marriage when it would have been much better for her if she would have left it. But as she told me once, "You can't help who you love," meaning that we fall in love and there's not much we can do about it. And when "you make your bed, you have to lie in it" comes to light. My mother--and I'm sure others feel the same about their mothers--deserves the best care we can provide for her.
My family has to be able to trust them to take good care of Mom in our absence, though they told me there is someone from the family there every day of the week, sometimes more than one person shows up on the same day. I'm glad they notice that because they will tend to her care because they never know when one of us is going to walk through that door. There is a reason why I don't let them know when I am going to visit.
Should family members speak up? If you don't develop a relationship with the staff who take care of your loved one what do you have? When you open your loved one's life to a huge "family" at a nursing facility, you have to open yourself to that family, as well. How can your loved one regard the nursing home as "Home" if you don't? Family isn't just what you're born into. It's the circle of human beings that you belong to.
One of my daughters had a "discussion" with a friend. Afterward, she felt like a heel because she had questioned whether this person was truly her friend. I told her, and I meant it, when you have disagreements with someone, the fixing of things--the making up after a disagreement--strengthens the friendship. That's not a bad thing. In fact, that's a doggone good thing! That's when the misunderstandings and misinterpretations are cleared up.
Should you speak up or keep your mouth shut so you don't cause trouble? In my humble opinion, speaking up is a good thing. It doesn't have to be a knock-down, drag-out. It just needs to be clear: I am aware of the stigma of nursing home facilities. I am aware of what is best for my loved one. I am not trying to offend anyone. I'm trying to be fair, and I'm trying to make sure that my loved one--in my case, my mother--is well taken care of because she deserves to be well taken care of and I'm trying to honor those things she made me promise her when she was diagnosed with Alzheimer's nine years ago.
"I know the day is going to come when you will have to put me in a nursing home. It's OK. You do what you have to do. I know I'm going to argue with you, but it's the right thing so you do it. And when I don't know you any more, stop coming to visit me because I will be gone."
Yes, we moved her to a nursing home. Yes, she has argued with us about it. Will I ever stop visiting her? Probably not. Even when she doesn't know me any more I will continue to go if I am able. Even if all I can do is sit in the chair beside her bed and watch her sleep. But I pray, "Please, Lord, be kind to my mother."
(c) 2010 Cathy Thomas Brownfield
All rights reserved -- Contact author for permission of use.
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